27 July 2021 | News
To raise awareness and create new educational programs
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The Australian Government is providing $3.3 million to support the approximate two million Australians living with a rare disease, providing them with support, raise awareness and create new educational programs.
The new funding will drive the development and delivery of awareness and education resources, and care and support services, for people living with a rare disease, their families and carers, health professionals and the wider population.
Minister for Health and Aged Care, Greg Hunt, said the funding would help to provide new supports to those living with rare diseases. The hovernment took the first nationally coordinated step to address rare diseases with the release of the National Strategic Action Plan for Rare Diseases in February 2020 and this funding helps to build on these key foundational steps.
The University of New South Wales has received $1.9 million to deliver the Rare Disease Awareness, Education, Support and Training Project (RArEST). This project will develop and deliver rare disease resources, education and training which will include a focus on mental health, and social and emotional wellbeing.
Rare Voices Australia has received $1 million for its Rare Awareness Rare Education Project (RARE Project).
Further, the Australian National University has received $198,000 over 2 years for work to enhance healthcare provider awareness to improve the timely and accurate diagnosis of rare diseases.
The National Strategic Action Plan for Rare Diseases was developed by Rare Voices Australia in consultation with stakeholders, including people living with a rare disease, their families and carers.