Updated on 8 February 2017
Indraprastha Apollo Hospital, New Delhi is becoming a most preferred destination for the treatment of Crigler Najjar Syndrome which is a rare disease found one in a million. As a part of its treatment, patient has to undergo a liver transplantation since his existing liver doesn't contain essential enzyme GT which controls the formation of toxic substance called ‘Bilirubin'.
Recently, the hospital successfully completed another liver transplant operation of 13 year old Khalid Mohammad from UAE suffering from aforementioned syndrome. He has been suffering from this rare syndrome since birth and before the transplantation, he used undergo a phototherapy (for 14-16 hours a day) to prevent brain damage and hearing loss. But after the treatment, now he can live a normal life and can indulge himself in day-to-day activities without any complications. Khalid received a part of his father's liver and after this transplantation; he doesn't need phototherapy since the new liver contains important enzyme.
With this, till now, the hospital has effectively saved the lives of five patients suffering from Crigler Najjar Syndrome and it is looking positive to narrow down on this rare syndrome. In Crigler Najjar Syndrome, an essential enzyme GT is absent in the liver at birth. This deficiency results in toxic form of bilirubin to rise in the blood to a very high level, which can cross into the brain and produce irreversible complications. To prevent brain damage and hearing loss from this condition, phototherapy (treatment by the use of special light) is needed for 14-16 hours a day.
Dr Anupam Sibla, Group Medical Director, Apollo Hospitals Group and Senior Paediatric Gastroenterologist and Hepatologist, Indraprastha Apollo Hospitals said, "With the new liver, Khalid received the enzyme which he was not born with. He finally bid adieu to his constant companion- the phototherapy unit. We have now performed more than 28000 liver transplants in patients from India and 40 countries."